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Primary Lateral Sclerosis is a degenerative upper motor neuron disease characterized by a gradual development of muscle weakness, and stiffness. It strikes the voluntary muscles, and usually begins in the legs. Initial symptoms may include difficulty with balance, weakness and stiffness in the legs, muscle spasms, and dragging the toes while walking. Occasionally PLS may begin in the tongue or hands. In the tongue, the initial symptom is slurring of words. In the hands symptoms include weakness and stiffness in the fingers, general clumsiness, and fatigue doing repetitive tasks with the fingers. (It's similar to ALS but luckily it isn't fatal)
Recently, the National Organization of Rare Disorders (NORD) has set up a fund to begin research on PLS. The fund must reach $35,000 to begin research. As of September 8, 2000, the fund contained $14,725.
I'm sure you all have worthwhile charities that you donate to but any help you can give would be greatly appreciated by me and my family. If interested in making a tax-deductable donation, please send your donation to:
NORD (National Organization of Rare Disorders) P.O. Box 8923 New Fairfield, CT 06812-8923
Include a note stating that it is for the PLS Research Fund.
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Here's wishing the best of luck to your mom and NORD.
------------------ Cetera (Teri) Heino 1999 SS #0069 and everything else. [IMG]http://banners.wunderground.com/banner/gizmotimetempbig/US/OR/hillsboro.gif[/IMG]
Posts: 7198 | From: Near Portland, Oregon, USA | Registered: Feb 2000
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Good luck to your mom and all of you. I will be sending along a donation. Posts: 5946 | From: Litchfield, NH, USA | Registered: Feb 2000
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Sorry to hear that Scott... Thoughts and prayers are with your family.
OG
quote:Originally posted by Scott Chab: Primary Lateral Sclerosis is a degenerative upper motor neuron disease characterized by a gradual development of muscle weakness, and stiffness. It strikes the voluntary muscles, and usually begins in the legs. Initial symptoms may include difficulty with balance, weakness and stiffness in the legs, muscle spasms, and dragging the toes while walking. Occasionally PLS may begin in the tongue or hands. In the tongue, the initial symptom is slurring of words. In the hands symptoms include weakness and stiffness in the fingers, general clumsiness, and fatigue doing repetitive tasks with the fingers. (It's similar to ALS but luckily it isn't fatal)
Recently, the National Organization of Rare Disorders (NORD) has set up a fund to begin research on PLS. The fund must reach $35,000 to begin research. As of September 8, 2000, the fund contained $14,725.
I'm sure you all have worthwhile charities that you donate to but any help you can give would be greatly appreciated by me and my family. If interested in making a tax-deductable donation, please send your donation to:
NORD (National Organization of Rare Disorders) P.O. Box 8923 New Fairfield, CT 06812-8923
Include a note stating that it is for the PLS Research Fund.
For more info see [url]http://www.geocities.com/freyerse/index.html [/url]
Thanks in advance, Chab
Posts: 621 | From: Houston Texas USA | Registered: Feb 2000
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Just wanted to say thanks to everyone for the posts and e-mails. It means a lot to me and I'm sure my Mom will appreciate the kindness. I'm going to print out all the e-mails and posts and show them to her on Christmas.
You guys and gals are the best...
Chab
Posts: 1762 | From: Wilmington, DE, USA | Registered: Feb 2000
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thoughts coming to you from NY. Im sorry to hear the bad news. This has been a really bad year. Just lost my grandfather a week before Thanksgiving so I feel for you. Take care and stay strong
------------------ Anthony 1997 30th Anniversary SS #0796/#0203 SSOA F97-0796 Proud member of MAFBA and SSOA Director and Founder of the Long Island Fbody Assoc.(LIFBA) And all around nice guy!! Home of 1997 SS#0796/0203
Posts: 439 | From: Freeport, NY, United States | Registered: Feb 2000
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