This is topic NFB - I just found out my Mom was diagnosed with PLS... in forum SSOA: "Back Porch" at www.chirpthird.com.


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Posted by Scott Chab (Member # 174) on :
 
Primary Lateral Sclerosis is a degenerative upper motor neuron disease characterized by a gradual development of muscle weakness, and stiffness. It strikes the voluntary muscles, and usually begins in the legs. Initial symptoms may include difficulty with balance, weakness and stiffness in the legs, muscle spasms, and dragging the toes while walking. Occasionally PLS may begin in the tongue or hands. In the tongue, the initial symptom is slurring of words. In the hands symptoms include weakness and stiffness in the fingers, general clumsiness, and fatigue doing repetitive tasks with the fingers. (It's similar to ALS but luckily it isn't fatal)

Recently, the National Organization of Rare Disorders (NORD) has set up a fund to begin research on PLS. The fund must reach $35,000 to begin research. As of September 8, 2000, the fund contained $14,725.

I'm sure you all have worthwhile charities that you donate to but any help you can give would be greatly appreciated by me and my family. If interested in making a tax-deductable donation, please send your donation to:

NORD (National Organization of Rare Disorders)
P.O. Box 8923
New Fairfield, CT 06812-8923

Include a note stating that it is for the PLS Research Fund.

For more info see
www.geocities.com/freyerse/index.html

Thanks in advance,
Chab

[This message has been edited by Scott Chab (edited 06 December 2000).]
 

Posted by HotWheelSS aka HTWLSS (Member # 117) on :
 
Here's wishing the best of luck to your mom and NORD.

------------------
Cetera (Teri) Heino
1999 SS #0069 and everything else.
[IMG]http://banners.wunderground.com/banner/gizmotimetempbig/US/OR/hillsboro.gif[/IMG]
 

Posted by Happy_Dan (Member # 118) on :
 
Good luck to your mom and all of you. I will be sending along a donation.

 
Posted by Hawkeye (Member # 88) on :
 
So sorry - cheque is on the way.

I wish for her the best of health. Let's all pitch in to help!
 

Posted by KevinA (Member # 139) on :
 
We wish you both the best. We will keep you in our prayers.
 
Posted by 99 HOSS (Member # 109) on :
 
She, and you, will be included in our thoughts and prayers.
 
Posted by OLD GUY (Member # 221) on :
 
Sorry to hear that Scott...
Thoughts and prayers are with your family.

OG

quote:
Originally posted by Scott Chab:
Primary Lateral Sclerosis is a degenerative upper motor neuron disease characterized by a gradual development of muscle weakness, and stiffness. It strikes the voluntary muscles, and usually begins in the legs. Initial symptoms may include difficulty with balance, weakness and stiffness in the legs, muscle spasms, and dragging the toes while walking. Occasionally PLS may begin in the tongue or hands. In the tongue, the initial symptom is slurring of words. In the hands symptoms include weakness and stiffness in the fingers, general clumsiness, and fatigue doing repetitive tasks with the fingers. (It's similar to ALS but luckily it isn't fatal)

Recently, the National Organization of Rare Disorders (NORD) has set up a fund to begin research on PLS. The fund must reach $35,000 to begin research. As of September 8, 2000, the fund contained $14,725.

I'm sure you all have worthwhile charities that you donate to but any help you can give would be greatly appreciated by me and my family. If interested in making a tax-deductable donation, please send your donation to:

NORD (National Organization of Rare Disorders)
P.O. Box 8923
New Fairfield, CT 06812-8923

Include a note stating that it is for the PLS Research Fund.

For more info see
[url]http://www.geocities.com/freyerse/index.html [/url]

Thanks in advance,
Chab


 

Posted by Tony SS 00-0100 (Member # 673) on :
 
Scott,
You and Your Mom are in our prayers.
I will be looking at sending the Org. a check.
Hang in there.

------------------
Tony C 2000 SS # 0100
Red, T-Tops, M6, Floor Mats, Key Fobs, SLP Resonator Exhaust, Whisper lid, STB
 

Posted by 97 SS LT1 (Member # 136) on :
 
Scott, my thoughts and prayers are with You and your Mom.
 
Posted by 98-mongooSSe (Member # 794) on :
 
So sorry, Scott.
My prayers are with you and your Mom.

Shay
 

Posted by YIKESS (Member # 350) on :
 
Sorry to hear about that Scott. Hope everything works out.

YIKESS

------------------
1999 Camaro SS #1022 Black, Grey Leather, M6, T-tops

SLP Options:
Chrome Wheels, Dash Plaque, Key Fobs, Floor Mats, Car Cover

Proud Member of:
SSOA F99-1022
LIFBA (Long Island F-Body Association)

Also:
New York Chapter Director of:
M.A.F.B.A. (Mid Atlantic F-Body Association)

Mods:
SLP Shifter and knob, Lou's short stick, Whisper Lid w/ K&N, BMR STB, !CAGS, Shift Light, Borla Exhaust, Corvette Fuel Rail Covers, Mobil 1 Oil Cap, Mobil 1 Plaque, Zaino, Eibach Springs, Lakewood Panhard Bar
 

Posted by Scott Chab (Member # 174) on :
 
Just wanted to say thanks to everyone for the posts and e-mails. It means a lot to me and I'm sure my Mom will appreciate the kindness. I'm going to print out all the e-mails and posts and show them to her on Christmas.

You guys and gals are the best...

Chab
 

Posted by Hard Top (Member # 185) on :
 
thoughts coming to you from NY. Im sorry to hear the bad news. This has been a really bad year. Just lost my grandfather a week before Thanksgiving so I feel for you. Take care and stay strong

------------------
Anthony
1997 30th Anniversary SS #0796/#0203
SSOA F97-0796
Proud member of MAFBA and SSOA
Director and Founder of the Long Island Fbody Assoc.(LIFBA)
And all around nice guy!!
Home of 1997 SS#0796/0203
 



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